Event Information

Event Topic:
Empowering Rare Disease Understanding: Insights on Database Development

Event Description:
Understanding the nuances of any disease hinges on deeply comprehending its impact on patients. This presentation delves into the creation of a rare disease healthcare provider and patient database, pivotal for informed decision-making and program development. Case studies showcasing targeted outreach initiatives, from awareness campaigns to clinical trial recruitment, will be highlighted, offering valuable insights for healthcare professionals and researchers.

Date/Time:
Date(s) - 05/07/24
8:15 am - 10:15 am

Event Location:
Zoom talk: https://us02web.zoom.us/j/88549236999:

Speaker Information

Event Speaker:
Austin Letcher

Event Speaker Title:
Program and Operations Director

Event Speaker Company:
Engage Health

Event Speaker Bio:

Austin Letcher, MS; Program and Operations Director; With over 15 years of experience, Austin has demonstrated expertise in the rare disease space, focusing on patient registries, clinical trial recruitment, and as a service provider. He has developed over 40 orphan patient registries and executed 20+ small-to-large clinical trial recruitment programs spanning Phase I-III trials. Austin has also led 20+ orphan PRO (Patient Reported Outcomes) and market research initiatives, contributing significantly to the advancement of knowledge in the field. His extensive background and proficiency in navigating pre-clinical data collection enables engaging with stakeholders. Austin is dedicated to driving progress in the field of rare disease research through strategic and impactful approaches.

Event Details

Cost:
$0

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